Adjusting to Life with Fibromyalgia Over and Over Again

When our lives change, even for the better, our stress increases. When you have fibromyalgia, that usually means your pain and your fatigue change… and not for the better. As I wrote about earlier, I’m facing some a proverbial barrel of the gun in terms of changes: I’ve been promoted, and I’m starting a graduate school program. Yeah, I think I’m crazy too.

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The Stretch: The Fear of Taking on Too Much When You Have Fibromyalgia

I have fibromyalgia. Some of my days are good days, and I feel as strong as I ever was, stronger even, in some ways. I can climb all the metaphorical and literal mountains that I used to climb. Other days, I feel so fatigued, it’s as if the weight of all my former aspirations and dreams and losses have manifested into 10-pound weights that are hanging all over my body. I fantasize about lying down on the floor and resting. I never know which day I am going to have, but I have more good days than I used to have.

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That Fluttery Feeling

I was standing near the hall, turned back to face my husband. I don’t remember what we were talking about, but I was teasing him about something. I remember briefly thinking—as I often do—that he was a handsome man and I was lucky he was my husband. Then I felt as if I had a net thrown over my body and my senses. The world went fuzzy and dark, and I couldn’t stand. My legs lost muscle tension. I half fell and half sat with very little grace on the floor. It’s not the first time I’ve partially fainted, and it’s not at all romantic. Moments earlier, I had stood and walked across the room, and my body sometimes cannot handle the blood pressure changes between sitting and standing.

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Managing my Fibromyalgia at Significant Life Events

When my friend asked me if I would be her bridesmaid, I wanted, wanted, wanted to say yes. I wanted to scream yes! I wanted to dance around in the street shouting, “she’s getting married!” because I was that stupidly happy for my friend. She deserves much happiness and much success, so the making-it-official day was definitely something I wanted to help her celebrate. Marriage is about more than the wedding, the ups and downs of a relationship, but the wedding ceremony itself is a time to come together with the people closest to you and celebrate the commitment to those ups and downs with a big hoopla. Except, I have fibromyalgia and a gazillion medical bills, so I couldn’t let the “yes!” escape my lips without considerations. I had to ask questions first. I had to plan for success around my illness; I did not want to let my friend down. I am hopeful that my own preparations and decisions about managing my chronic illness may help someone else think about how to tackle participating in such a significant event in his or her life.

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A Day of Making Choices with my Fibromyalgia

I woke up yesterday with a dull ache at my right temple. I could feel the migraine coming, and I would have taken my onset migraine medication right then except if I take my migraine medication at the same time as my fibromyalgia medication, I’m destined for a day on the couch or in bed. Yesterday was not supposed to be a day on the couch. I made my choice and waited to relieve the pain.

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Fibromyalgia and the Perils of Working from a Home Under Construction

 

Stress is one of the larger triggers to flares in my fibromyalgia fatigue and pain symptoms. My fibromyalgia (and that roguish fledermausen) is the reason that I work from home. Working from home has really been a godsend for me. The flexibility has allowed me to unwind and unknot some of the kinks that have made my life difficult over the last two years. I’ve had a soothing place to work, and the best office mates ever who offer excellent stress relief on a regular basis. Who doesn’t like a cat snuggle or a five minute break to throw a Frisbee for an overzealous aficionado of fetch?

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A Jelly Day of a Sunday

I’m participating in the Food in Jars Mastery Challenge, and the March skill is jelly or shrubs. I’ve never made jelly (I typically prefer jams), and I had to google what a shrub is (a sugary fruit-vinegar combination used in cocktails or tonic water). I have a tendency to go a little overboard when it comes to challenges; for example, I made three marmalades in January over the long Martin Luther King Jr. weekend. With the chaos of foundation repairs, new flooring, a wood stove, seven yards of dirt in the driveway, and taking in a new foster kiddo, I managed to carve out time on Sunday to make two jellies and a shrub. Yep, I’m a touch crazy and surprisingly not too tired.

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